BRAINS FOR BRAIN Onlus Foundation (B4B)

News

Maurizio Scarpa has been appointed as a member of the IRDiRC Therapies Scientific Committee

Maurizio Scarpa has been appointed as a member of the IRDiRC Therapies Scientific Committee
 Brains for Brain Foundation is proud to announce that  the Consortium Assembly of the International Rare Diseases Research Consortium (IRDiRC) has voted to appoint Maurizio…

IRDiRC has a new vision: Enable all people living with a rare disease to receive an accurate diagnosis, care, and available therapy within one year of coming to medical attention

IRDiRC has a new vision: Enable all people living with a rare disease to receive an accurate diagnosis, care, and available therapy within one year of coming to medical attention
Brains for Brain is glad to share the new vision and goals of the International Rare Diseases Research Consortium (IRDiRC). IRDiRC teams up researchers and organisations…

BRUSSELS, 21 JUNE 2017_ Maurizio Scarpa is the newly appointed Chairman of the BOARD OF ERNs COORDINATORS

BRUSSELS, 21 JUNE 2017_ Maurizio Scarpa is the newly appointed Chairman of the BOARD OF ERNs COORDINATORS
Brussels June 21st  2017_ MetaBERN is delighted to announce the appointment of its Coordinator, Prof Maurizio Scarpa, as the first Chairman of the European Reference…

Cross-linking European Reference Network

Cross-linking European Reference Network
 24 European Reference Networks (ERNs) were formally launched on 9 March 2017. Representatives from the networks and Member States, along with patients and policymakers, gathered…

IT’S BRAIN AWARENESS WEEK!!!

IT'S BRAIN AWARENESS WEEK!!!
THE BRAINS FOR BRAIN ONLUS FOUNDATION PROMOTES THE BRAIN AWARENESS WEEK  March 13-19, 2017 Every March, Brain Awareness Week (BAW) unites the efforts of partner…

Vilnius, 9 March 2017_ European Commission award ceremony to congratulate and officially launch the newly established 24 European Reference Networks (ERNs).

Vilnius, 9 March 2017_ European Commission award ceremony to congratulate and officially launch the newly established 24 European Reference Networks (ERNs).
              The Third Conference on European Reference Networks took place in Vilnius at the Lithuanian Exhibition and Congress Centre LITEXPO…

11th Brains for Brain Foundation (B4B) International Workshop, 29th March-1st April 2017, Frankfurt –Germany

11th Brains for Brain Foundation (B4B) International Workshop, 29th March-1st April 2017, Frankfurt –Germany
We are pleased to announce the forthcoming 11th meeting of the Brains for Brain Foundation (B4B) . B4B is an International Task Force(chaired by Prof Maurizio Scarpa)…

On 1 March the newly established European Reference Networks (ERNs) will start their work FOR THE PATIENTS WITH RARE DISEASES

On 1 March the newly established European Reference Networks (ERNs) will start their work FOR THE PATIENTS WITH RARE DISEASES
ERNs are unique and innovative cross-border cooperation platforms between specialists for the diagnosis and treatment of rare or low prevalence complex diseases. Speaking to doctors,…

FEBRUARY 28 2017, IT’S THE RARE DISEASE DAY

FEBRUARY 28 2017,  IT'S THE RARE DISEASE DAY
Today is Rare Disease Day 2017! Today, with events taking place in over 90 countries all around the world, we hope to raise more awareness than…

MetabERN informative material

MetabERN informative material
The informative synopsis about the European Reference Network for Hereditary Metabolic Diseases (MetabERN) has been developed with the aim to make different stakeholders aware about the project…

MetabERN is one of the 23 approved European Reference Networks For Rare Diseases

MetabERN is one of the 23 approved European Reference Networks For Rare Diseases
On 15th December the Board of Member States of European Reference Networks (ERNs) voted to approve all 23 ERN proposals submitted under the first wave…

Call for proposals: 7th NCL Research Award (NCL Foundation)

The NCL Foundation aims to help find a cure for the most prevalent form of childhood dementia caused by mutations in the CLN3 gene. Together with the existing…

The European Reference Network for Hereditary Metabolic Diseases (MetabERN) is underway

The European Reference Network for Hereditary Metabolic Diseases (MetabERN) is underway
On June 21st 2016, the Helios Dr. Horst  Schmidt Kliniken has submitted a proposal to the European Commission aimed at establishing the European Reference Network…

10th B4B Workshop and InNerMeD 3rd Open Conference

10th B4B Workshop and InNerMeD 3rd Open Conference Brains for Brain Foundation (B4B), the organisation leading the “Inherited NeuroMetabolic Disease Information Network” (InNerMeD-I-Network) project, is…

BRAIN AWARENESS WEEK

THE BRAINS FOR BRAIN ONLUS FOUNDATION PROMOTES THE BRAIN AWARENESS WEEK March 14-20, 2016 Every March, Brain Awareness Week (BAW) unites the efforts of partner…

B4B IS A FRIEND OF RARE DISEASE DAY!

B4B IS A FRIEND OF RARE DISEASE DAY!
  B4B IS A FRIEND OF RARE DISEASE DAY! Celebrated on the last day of February–the rarest day on the calendar–this is the one day every…

10th B4B Workshop- Attendance and Contacts

10th anniversary of the Brains for Brain Foundation.  We are pleased to announce that in these days, we are drafting the scientific program of the…

The Pathobiology of the Lysosome and Lysosomal Diseases Conference, 7th – 10th July 2016

 The Pathobiology of the Lysosome and Lysosomal Diseases Conference 2016 shall take place at Clare College, Cambridge, UK in July 2016 This conference will present…

A Plan to facilitate and encourage research in iNMDs

A Plan to facilitate and encourage research in iNMDs
Since inherited neurometabolic diseases (iNMDs) are rare diseases affecting a small population of patients, their recruitment in biomedical research, including clinical trials, is getting more…

10th B4B Workshop-New meeting location

10th anniversary of the Brains for Brain Foundation.  We are pleased to announce that in these days, we are drafting the scientific program of the…

PRECEPTORSHIP PROGRAMME ON MUCOPOLYSACCHARIDOSES

  PRECEPTORSHIP PROGRAMME ON MUCOPOLYSACCHARIDOSES
The Brains for Brain Foundation, in collaboration with the Centre for Rare Diseases at the Helios Horst Schmidt Kliniken in Wiesbaden and as part of the…

B4B and BtRAIN – The European Training Network (Brain Barriers Training)

Brains for Brain is proud to be one of the BtRAIN Associated training partners. Such cooperation strengthens our long-standing commitment to  bring forward  new and innovative therapeutic…

Early stage researcher/PhD student positions available in the European Training Network Brain

The European Training Network Brain Barriers Training – BtRAIN invites applications for 12 positions for Early Stage Researchers (ESR)/PhD students.  Research in BtRAIN (www.btrain-2020.eu) is…

EUROPEAN REFERENCE NETWORKS: 2ND CONFERENCE ON ERN – Lisbon, 8-9 October 2015

 EUROPEAN REFERENCE NETWORKS: 2ND CONFERENCE ON ERN -  Lisbon, 8-9 October 2015
  The European Commission is organising a 2nd conference on European Reference Networks on 8-9 October 2015, which will be hosted by the Ministry of Health in…

“Realising European Reference Networks for Rare Diseases: a preparatory workshop for the rare disease field” – Bruxell, 1-2 July 2015

“Realising European Reference Networks for Rare Diseases: a preparatory workshop for the rare disease field” - Bruxell, 1-2 July 2015
The Brains for Brain Foundation (B4B), the organisation leading the Inherited NeuroMetabolic Diseases Information Network (InNerMeD-I-Network) project, has recently participated at the workshop “Realising European Reference…

First InNerMeD Southeastern Europe Network Meeting

  “Inherited NeuroMetabolic Disease Information Network” (InNerMeD) is an European project and it has been funded by the Executive Agency for Health & Consumers (DG-SANCO)…

BRAIN AWARENESS WEEK

THE BRAINS FOR BRAIN ONLUS FOUNDATION PROMOTES THE BRAIN AWARENESS WEEK March 16-22, 2015 Every March, Brain Awareness Week (BAW) unites the efforts of partner…

IT’S RARE DISEASE DAY TODAY!!!

IT'S RARE DISEASE DAY TODAY!!!
  B4B IS A FRIEND OF RARE DISEASE DAY!  Celebrated on the last day of February–the rarest day on the calendar–this is the one day every…

Official opening ceremony of the Center for Rare Diseases (CRD) at HSK – Wiesbaden

Official opening ceremony of the Center for Rare Diseases (CRD) at HSK - Wiesbaden
It is with great pleasure that we announce the Opening Ceremony of the New Center for Rare Diseases in Wiesbaden. The B4B Foundation has contributed…

9th B4B Workshop

9th B4B Workshop
On February 5-7th, 2015, we will have the 9th B4B Workshop in Frankfurt.  The meeting aims to discuss on: Research achievements in the field of…

17th Barrier- and Transporter – Meeting

 17th  Barrier- and Transporter – Meeting
We are pleased to announce the  17th Barrier and  Transporter – Meeting taking place in Bad Herrenalb close to Karlsruhe, Germany, from  May 11th to May…

LSDs Gordon Conference 2015

LSDs Gordon Conference 2015
We are pleased to announce the  Lysosomal Diseases Gordon Research Conference that will be held in March 15-20, 2015 c/o  the historic Hotel Galvez – Galveston, Texsas.…

BBB  December 10 – 13, 2014

BBB December 10 - 13, 2014
We are pleased to announce the fourth Cold Spring Harbor conference on Blood Brain Barrier which will begin at 7:30 pm on Wednesday, December 10…

Rare Wednesdays at HSK, Dr Horst Schmidt Klinik

Rare Wednesdays at HSK, Dr Horst Schmidt Klinik
Rare diseases are characterized not only by their low prevalence but also by their wide heterogeneity and complexity. They often show a broad clinical spectrum…

EMA and FDA joint proposal for clinical investigation of new medicines for Gaucher disease in children

EMA and FDA joint proposal for clinical investigation of new medicines for Gaucher disease in children
The European Medicines Agency (EMA) and the United States Food and Drug Administration (FDA) have released a draft joint proposal to facilitate the clinical investigation of new medicines for the treatment…

SIGNING OF A COLLABORATION AGREEMENT BETWEEN THE INTERNATIONAL RESEARCH FOUNDATION BRAINS FOR BRAIN AND RARISSIMAS

SIGNING OF A COLLABORATION AGREEMENT BETWEEN THE INTERNATIONAL RESEARCH FOUNDATION BRAINS FOR BRAIN AND RARISSIMAS
    During his last appointments at the EU Parliament in Bruxelles, Dr Maurizio Scarpa, expert in the field of rare neurological disorders and President…

Overview and Highlights of the 8th B4B WORKSHOP & INNERMED 1st OPEN CONFERENCE – Frankfurt March 7th – 9th, 2014

Overview and Highlights of the 8th B4B  WORKSHOP & INNERMED 1st OPEN CONFERENCE - Frankfurt  March 7th - 9th, 2014
  The Brains for Brain Foundation (B4B) is an International Task Force formed by outstanding scientists and clinicians leaders in the neurological field, grouped together…

Frankfurt 2014 – March, 7th-9th 2014

Frankfurt 2014 - March, 7th-9th 2014
8th BRAINS FOR BRAIN PLENARY WORKSHOP and INNERMED INFORMATION NETWORK 1st OPEN CONFERENCE Frankfurt, Germany, Mercure Hotel Frankfurt Airport March 7th – 9th, 2014 Brains…

RARE DISEASE DAY

RARE DISEASE DAY
B4B is a friend of RARE DISEASE DAY 28 February 2014 28 February 2014 marks the seventh international Rare Disease Day coordinated by EURORDIS. On…

BRAIN AWARENESS WEEK

BRAIN AWARENESS WEEK
THE BRAINS FOR BRAIN ONLUS FOUNDATION PROMOTES THE BRAIN AWARENESS WEEK March 10-18, 2014 Every March, Brain Awareness Week (BAW) unites the efforts of partner…

SCIENCE AND INNOVATION: CLOSER THAN RARE!

SCIENCE AND INNOVATION: CLOSER THAN RARE!
Brussels – 17th February 2014 B4B ATTENDED THE WORKSHOP “SCIENCE AND INNOVATION: CLOSER THAN RARE!” With the purpose of impacting the Institutional Leaders and the…

B4B EP ROUNDTABLE

B4B EP ROUNDTABLE
“Paving the Way for a Competitive and Dynamic EU Knowledge Economy: the Way Forward in Rare Diseases”. Rare Neurometabolic Pediatric Diseases: a joint effort is…