B4B SUPPORTS RARE DISEASE DAY!
Brais for Brain is proud to support Rare Disease Day 2025, which will take place on February 28, bringing together people from more than 100 countries to raise awareness for the 300 million individuals worldwide living with rare diseases. This annual event highlights the importance of equity in healthcare, access to treatments, and improved medical research for those affected by rare conditions.
What is Rare Disease Day?
Launched in 2008 by EURORDIS (Rare Diseases Europe) and its Council of National Alliances, Rare Disease Day takes place every year on the last day of February. Its mission is to shine a spotlight on rare diseases, which affect 1 in 20 people globally, while fostering solidarity and advocating for better representation, support, and care for patients, families, and caregivers.
Why is Rare Disease Day Important?
For those living with rare diseases, awareness is a powerful tool. Rare Disease Day 2025 seeks to:
- Highlight the struggles of those affected by rare conditions.
- Advocate for equitable access to diagnosis, treatment, and care.
- Bring together healthcare professionals, researchers, policymakers, and patient organizations to drive positive change.
With over 100 countries participating, Rare Disease Day continues to grow as a global movement, encouraging collaboration, support, and action for rare diseases.
The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, .
B4B welcomes this initiative and is pleased to contribute to raise awareness amongst the general public, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases about rare diseases and their impact on patients’ lives. Due to the fragmentation of knowledge, it can take years before a patient affected by rare diseases get diagnosed.
B4B considers the promotion and the coordination of Research extremely important for health care system, and particularly for Rare Diseases, since they represent the tools by which speed up the achievements of results in research and benefits for patients. This year Rare Disease Day encourages us to continue finding ways to work together to provide the different kinds of care that people living with a rare disease need.
B4B has done and will continue to do big efforts in order to encourage clinicians to work together in the most effective and efficient way in order to produce the best health outcomes for the patients.
For more info about the rare disease day please visit http://www.rarediseaseday.org/