Today is Rare Disease Day: it is time to ‘show your rare’
Wednesday 28 February marks the twelth edition of the international Rare Disease Day that is being celebrated in over 90 countries and by hundreds of patient organisations worldwide.
The theme for Rare Disease Day 2019 is ‘Bridging health and social care’. Focusing on bridging the gaps in the coordination between medical, social and support services in order to tackle the challenges that people living with a rare disease and their families around the world face every day.
Rare Disease Day 2019 is an opportunity to be part of a global call on policy makers, healthcare professionals, and care services to better coordinate all aspects of care for people living with a rare disease.