BRAINS FOR BRAIN Onlus Foundation (B4B)

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14th Brains for Brain Foundation (B4B) International Workshop, 6th -8th March 2020, Frankfurt – Germany

We are pleased to announce the forthcoming 14th meeting of the Brains for Brain Foundation (B4B).

B4B is an International Task Force (chaired by Prof Maurizio Scarpa) composed of outstanding scientists and ‘clinicians’ who are leaders in the neurological field. Together with Biotech companies they aim to facilitate joint efforts to improve the understanding of rare genetic diseases affecting and seriously damaging the brain, in particular in children. The main mission of the fundation infact consists in the funding of translational research and education in the field of neurodegenerative paediatric disorders  mainly focusing  the attention on a group of about 40 genetically and biochemically very well characterised diseases, called Lysosomal Storage Disorders (LSDs).

According to its traditional programme, the workshop will be held in Frankfurt, Germany, since this venue is really well connected with all the countries and facilitates the participations of people from different parts of the world.

The meeting will therefore take place at the Hotel Mercure Frankfurt Airport.

Please note that this year, to avoid overlapping with other important meetings, this year we will have it in March.

The meeting will  in fact begin on March 6th at 2pm and end on the 8th with lunch. 

As usual, the programme will contain scientific and strategic sessions in which the following issues wlil be discussed:

1.         Research achievements in the field of neurodegenerative diseases, in particular lysosomal storage disorders (LSDs) at clinical and basic science level and in the field of Blood  Brain Barrier;

2.         New recent advances on natural history and pathophysiology of LSDs;

3.         Factors which control the entry into the brain of medicines and other therapeutic agents which may be helpful in treating central nervous system disease;

4.         How B4B, the European Reference Network on Rare heridary diseases (MetabERN) and the European Union might collaborate to stimulate interest on research in rare diseases;

5.         The role of the industries in driving innovation for new therapeutic approaches for true unmet needs.

A draft of the scientific programme is available here.

 If you wish to attend the workshop, please get in touch with Mrs Paula Caprelli (p.caprelli@jazzitaly.com) as soon as possible in order for us to be able to register your presence and predispose the logistics.

For general enquiries or any additional required information, please get in touch with Dr. Cinzia Maria Bellettato (c.bellettato@gmail.com)

 

PRECEPTORSHIP PROGRAMME ON RARE DISEASES: MUCOPOLYSACCHARIDOSIS, MANAGEMENT AND TREATMENT – Salzburg, April 10th, 11th and 12th, 2019

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The Brains for Brain Foundation, in collaboration with the Clinical Research Center in Salzburg and the Medizinisches Simulationszentrum Salzburg, and as part of the capacity building and training activities of the European Reference Network for hereditary Metabolic disorders (MetabERN), has organized a PRECEPTORSHIP PROGRAMME ON RARE DISEASES: MUCOPOLYSACCHARIDOSIS (MPS), MANAGEMENT AND TREATMENT” that will take place at the Salzburg Medical Simulation Center on April 10th, 11th and 12th,   2019.

The course will guest about 15 physicians from different countries who will visit to share experiences and being updated on the recent development on MPS. The meeting will also provide a comprehensive global forum for experts and participants to exchange ideas and present results on all aspects of MPSs.

For more details please see the complete programme.

Objective – The overall objective of the course is to train professionals with a scientific background and an interest on Lysosomal Storage Diseases, in particular Mucopolysaccharidoses (MPSs) and to provide them with theoretical expert knowledge and practical experience in both the recognition of these diseases and related management. The practical experience in management and treatment of MPSs will be gained through the use of patient case studies that the participants will work on throughout the course and in parallel with new topics being added to their theoretical knowledge base.

 Expected results – The main expected results of this program consist in ensuring safe and effective initiation of therapies in patients from countries where there is not experience of administration; decreasing the possibility of severe adverse events during treatment and helping patients to receive a state of the art follow up.

 Learning outcomes – At the end of the course participants will be able to discuss a multidisciplinary approach for the management and treatment of these complex disorders assuring an adequate follow up of patients by evaluating the status of the disease.

Participants and Requirements – Participants (max 15) are expected to have quite a good experience in the management of MPS patients in particular with the ERT and its possible adverse events. The Preceptorship will be run in English, a good knowledge of the English language is mandatory. Participants are required to attend for the entire length of the preceptorship.

How to apply – If you are interested in the PRECEPTORSHIP PROGRAMME ON RARE DISEASES: MUCOPOLYSACCHARIDOSIS, MANAGEMENT AND TREATMENT,  please send an email  with your CV to Dr. Cinzia Maria Bellettato, the Brains for Brain Scientific Officer,  at c.bellettato@gmail.com

All candidates will be evaluated according to the skills, qualifications, experience and professional interest considered necessary to successfully complete the preceptorship.

 

IMPORTANT: Please note that B4B will cover travel from EU countries only and that non-EU affiliates will have to cover for flights.

For more details please see the complete programme.