DISCOVER THE SPEAKERS & MODERATORS
Discover the speakers & moderators
Meet the thought leaders, patient advocates, researchers and policy-makers shaping the future of rare disease innovation and advocacy:
Day 1: Research & Innovation
Fostering competitive excellence in science and innovation through support for clinical trials and translational research.
Day 2: EU Infrastructure & Skills
Building pan-EU infrastructure to strengthen European Reference Networks and enhance capacity, including newborn screening and the use of data, registries and AI to expedite diagnosis and treatment initiation.
Day 3: Policy & Funding
Overcoming fragmentation by establishing a coherent policy and funding regulatory framework specific to rare diseases, highlighting the importance of cross-border care.