HLM RARE
Join us for a high-level, three-day meeting dedicated to forging a robust research & innovation ecosystem for rare diseases in the EU. This event will gather key stakeholders — including EU policymakers, industry leaders, patient advocacy groups, researchers, and healthcare providers — to identify concrete actions and incentives to enhance innovation across the rare disease ecosystem.
By involving all actors in the development, approval, and access to new therapies, we aim to establish a predictable regulatory pathway, ensuring that the benefits of scientific advancements reach all European citizens, particularly those often left behind.
A central goal of the HLM Rare will be advocating for the EU’s adoption of a European Declaration on Rare and Complex Diseases, aiming to establish a sustainable Research and Innovation Ecosystem that ensures continuous dialogue and collaboration among all stakeholders.