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THE BRAINS FOR BRAIN ONLUS FOUNDATION PROMOTES THE BRAIN AWARENESS WEEK
March 10-18, 2014

Every March, Brain Awareness Week (BAW) unites the efforts of partner organizations worldwide in a week-long celebration of the brain. BAW is a worldwide global campaign promoted by Dana Alliance for Brain Initiatives (Dana Foundation) and  European Dana Alliance for the Brain aimed to raise public awareness about the progress and benefits of brain research.
B4B Foundation is one of the official partners of the BAW and every year actively celebrates it educating the public about the wonders of the brain  and the nervous system and organizing a series of conferences, focused on the understanding of pathophysiology and therapy for neurodegenerative disorders, throughout which participants can learn from top neuroscientists news on latest scientific findings on Brain and Brain related diseases.

Brussels – 17th February 2014
B4B ATTENDED THE WORKSHOP
“SCIENCE AND INNOVATION: CLOSER THAN RARE!”

With the purpose of impacting the Institutional Leaders and the Society to the problem of rare diseases and encouraging constructive action on the part of policy makers, B4B actively participated to the Workshop “SCIENCE AND INNOVATION: CLOSER THAN RARE!” held at the European Parliament in Brussels on 17th February 2014.
The workshop, hosted by MEPs Maria da Graça CARVALHO, and Mario DAVID under the patronage of the Presidency of the Portuguese Republic, First Lady of Portugal Maria Cavaco Silva, was also attended by Tonio BORG, Commissioner for Health and Consumer Policy, European Commission.
During the meeting it was generally agreed that much of European research lacks overall coordination and remains a little fragmentary.
One of the big challenges with rare disease is diagnosis.
Diagnosing a rare diseases is in fact often a long and complex process. This is mainly due to the fact that scientific knowledge is generally insufficient and scattered. The development of joint actions and collaborative efforts were encouraged since cooperation is the crucial key necessary to overcome the gaps in research in the area of rare diseases in EU.
It was highlighted the importance of pooling knowledge, resources and expertise on rare diseases, funding related research and authorising the best possible medicines for these diseases.
Participants agreed to continue their hard work so that in the near future, each and every patient affected by a rare disease can access the best possible diagnosis and care.

Download Agenda

Click on the files below for suggested reading
Graca Carvalho – speech and Tonio Borg – speech