The Brains for Brain Foundation, in collaboration with the Centre for Rare Diseases at the Helios Horst Schmidt Kliniken in Wiesbaden and as part of the EU funded project, INNERMED, is greatly committed not only to the management of patients but also to increase as much as possible the awareness and the training of medical professionals on neurometabolic diseases, with a particular effort on Lysosomal Diseases.
To this aim we have organized 2 Courses taking place at the Center for Rare Diseases at the Children’s Hospital of the HSK in Wiesbaden from November 2nd to 4th and from November 30th toDecember 2nd, 2015, respectively.
Each course will guest 10 physicians from different countries who will visit to share experiences and being updated on the recent development on MPS. The meeting will also provide a comprehensive global forum for experts and participants to exchange ideas and present results on all aspects of MPSs. For more details please see the scientific programme.
Objective – The overall objective of the course is to train professionals with a scientific background and an interest on Lysosomal Storage Diseases, in particular Mucopolysaccharidoses (MPSs) and to provide them with theoretical expert knowledge and practical experience in both the recognition of these diseases and related management. The practical experience in management and treatment of MPSs will be gained through the use of patient case studies that the participants will work on throughout the course and in parallel with new topics being added to their theoretical knowledge base.
Expected results – The main expected results of this program consist in ensuring safe and effective initiation of therapies in patients from countries where there is not experience of administration; decreasing the possibility of severe adverse events during treatment and helping patients to receive a state of the art follow up.
Learning outcomes – At the end of the course participants will be able to discuss a multidisciplinary approach for the management and treatment of these complex disorders assuring an adequate follow up of patients by evaluating the status of the disease.
Stay tuned for more info!
|Scientific Programme 2-4 Nov 2015||Scientific Programme 30 Nov-2 Dec 2015|